Category: Life

What is it about PC that makes it different from other diseases, even other cancers?

When asked  about David’s illness, I say ‘we’ now. We are going to the hospital,. We are going to have the catheter removed on Tuesday. The royal ‘we’ is used a lot of late.

When my husband had skin cancer,  twice,  I said,  ‘David has skin cancer’.  No We! No us!. David.  As though it belonged to him and I was a bystander.  HE HAD IT. WE didn’t!

I have a heart problem. WE don’t.

Why the difference? I could write a long boring essay on the facts, the statistics that I have read, re read and re read again! But I really only know my own reality, my truth.

Why the royal WE? because it is an”US’. We do have this awful heartbreaking disease. Me and my beloved man. Together we are on this journey even though you only read my words. Why? Because I love him. Because we are a couple. Because it isn’t just the good times we share, we share it all. Am I happy about the WE? No, not in a way. I am angry though!

Today I recognize my anger for what it is, I didn’t before, I don’t think.But I have seen it in my clients, those who have lost loved ones to death or a broken relationship. Any kind of loss can bring grief. This horrid visitor to our lives, PC; I use the word ‘visitor because no way am I going to make it welcome and become a permanent part of our lives!, has left me grieving.

My brother has cancer and yes, it’s scary and yes he is going to die. A huge reason to hate cancer. But we, his family don’t have it. We can care for him, me from a distance, we can make sure his life is as good as it can possibly be. From the outside. Of course it hurts and of course we feel for him. But WE don’t have the disease.

When my best friend Mo had lung cancer, the same kind Tony has, I still loved and cared for her. She stayed the strong funny, witty person she had always been. Still applied her make up and dressed well, right until the end.She was the same person but with an incurable illness and it broke my heart. But WE didn’t have it.

There was no royal WE in either of these sad and horrid illnesses.

Illness and disease touches everyone when it strikes. It is scary, unpredictable and usually unexpected. The families of the sufferer become carers, say all the right things. Do all the right things. But ultimately the cancer is in the one person. Everyone is affected to some extent, some more than others but it is the patient who has the illness, the pain the symptoms. Maybe sometimes the sufferer changes, pain can do that. Fear can do that. Maybe they are not able to do the things usually done by them. Family step in and help, they adapt.

But.

When PC strikes, all of the above happens but the cancer spreads emotionally,psychologically to the sufferer and to their partners or care givers. David has changed. I have changed. Life has changed and so has my world. In my world WE have cancer, with or without a little ‘c’. It’s there, every minute of every day.

How cross would Mo have been with me today. ‘Angry never helps Carol Ann’, she would say pointing her well manicured finger at me. ‘It’s a wasted energy and can achieve nothing’. But maybe it can. As the photo says, it protects me from sad.

With Mo as with Tony, sadly we knew what was happening. We knew Mo would not survive as we know Tony won’t either. This disease is still a killer in many guises but as I know, sometimes  it can be removed. It can be killed off.

David is fighting pc, WE are fighting pc and its scary. We don’t know what the outcome will be. We don’t know if he has been fortunate to have had every bit of this nasty, removed by Robotics. We may never really know. We have to wait. Wait to see the consultant. Then wait for the results of PSA tests. There has been so much waiting already.That is all we have for now, maybe forever. I think that’s the biggest difference. This cancer ‘with a little ‘c’ is a gamble. We don’t have a prognosis as such. We don’t know what will or may happen. WE. I repeat, this is US. not David, and I wouldn’t have it any other way, except to take it from him if I could.

Living with fear is something I did as a child. Maybe over the past 27 years, before life soured for us, I became complacent. Let my guard down. Was too happy being happy. Maybe I was smug, I had it all. A wonderful man who loves me more than I deserve. A loving family and living in a wonderful beautiful part of the world, surrounded by my menagerie of animals and a world of wildlife. Doing a job I loved. Yes maybe I was smug.

That’ll teach me!

I need to go back to the dark days. My early life where I learned, at an early age, to be hypervigilant. Watching for the next bad thing to happen. Letting my fear keep me as safe as possible and that wasn’t very safe.

But no, not really. I know in reality that I couldn’t have prevented the past 3 plus years and particularly stopped this latest unwanted guest from creeping in through the back door.

I couldn’t have known so couldn’t have prepared.

I never knew I could be this angry.

I never knew I could hate with such venom.

I have hurt in the past but the hurt I feel now, for the man I love with all of my heart, is huge. Beyond my comprehension.

Helpless I know. I have met her many times before. But before this latest nasty hit me in the face, helpless never stood a chance. Carol Ann told herself off. Pulled herself together. Became logical and with her back straight and her inner strength, took hold of helplessness and threw her out of the way and moved forward.

The past few weeks, watching the man I love go through so much, seeing him weak, poorly and yes, at one time, scared and helpless, trying to stay strong has sapped my reserves and left me lacking. I am tired. Angry. Feeling helpless and sad beyond words. I can’t sleep, listening as you do with a new baby in the house, making sure David is okay. Waiting if he goes to the bathroom, scared that he may have a Vasal Vagal attack  and collapse,as he has done in the past. Trying to pretend to be asleep when he wanders back into our bedroom. Our beautiful peaceful bedroom that has lost its ability to calm me. Lying quietly in the small hours, wanting to cry, shout or scream but pretending, once again to be asleep.

The days seem endless rituals of bathing, emptying bags, checking fluid intakes etc. No respite. The worry is the hardest to do deal with. I have searched for the ‘worry button’ to switch it off but to no avail. Even if the treatment has been successful and the cancer has gone, there may be side effects that can cause distress to the man and to his partner. He may have erectile dysfunction, may be incontinent. Being selfish, as long as I still have David, these things are insignificant but I know they may affect him. That is where the ‘I’ comes back big time. I will reassure him he is every bit as sexy as he has always been to me, every bit a man. If he has incontinence, we will cope. By that time I hope I have regained my ability to make him smile and nothing then will seem as bad. But as yet, we don’t know any of this and so the wait goes on.

Where has the laughter gone?

We could always make each other laugh. Even in the early days of our unwanted knowledge. Everyday, when life was hard, especially over the past few years, David could always make me smile.

Now he looks like I feel. Sad.  Down.

I don’t show him how I feel. I smile and tell him funny things I have seen or read on social media but I am aware that the smile doesn’t reach my eyes.

A little while ago, talking about the future, David looked at me and said.

‘It might not be over yet’

I heard but didn’t, if you know what I mean. I didn’t want to hear.

‘If it hasn’t all gone, if he didn’t get it all, I will have to have more treatment, maybe months of it’ he continued. Like it was a revelation!

I know! I know! I wanted to scream back but didn’t.

At first I couldn’t speak but then heard encouraging words, positive, strong words almost matter of factly coming from somewhere..

‘Okay but we don’t KNOW yet, if we need more treatment so be it. We will face it together and pull through. We will beat this!’

Who said that? was my  first thought.

I said that. It was my voice that seemingly unaware was speaking. Somewhere, deep inside of me Carol Ann was doing her best to push through, just when she was needed.

So, that’s why we think of pc affecting US. It does, we face it together, all of us. Each man with PC if he has a partner, a care giver, they are in it together. It affects both patient and partner in different but equal measures. I call it the ‘couple’s cancer’. It changes us, our outlooks and our lives.For those on here don’t have a ‘we’, then I encourage you all to join the Facebook groups and gain the love, support and strength that I gain from the members, who are becoming friends.

WE, David and I will not become one of the statistics. It isn’t David it is US and always will be.

It is OUR lives that are affected or infected. It is US who go through the pain, the hurt, the fear and the sad. Again, ‘in sickness and in health’.

One day soon, I hope, my old friend HUMOUR will return and that will give me more ammunition, just as it has always done in the past.

In my last blog I said I wished I could unknow what I now know. Un hear what I now have heard.

But Now.

I am afraid of the ‘not knowing’ the next bit. Not hearing the words I need to hear that will affect the rest of our lives.The ‘what if’s’ come back in full force.

I know, some will say ‘never satisfied’. but this is just how I feel. Sorry.

The other things that come with cancer with a little ‘c’. Are muddle headedness, confusion and fear of life itself. At first the muddled headed we laughingly likened to baby brain. Now it’s the same kind of thing for a different reason, not said with laughter and ‘pc brain’ is just as bad.

These last few blogs, have been very low,  sorry. I hope readers can understand my need to write and can always scroll past. Writing is freedom, freedom from the heaviness of being the partner of a man with pc , and a sufferer of the same.

Thanks for reading and thanks for comments last week. xx

 

 

 

 

Firstly I want to apologise, not for posting on social media but for seeming to be self-indulgent and weak. I am neither, I hope. I write because it helps. I write because I can be honest. I write to offload the pressures of this thing we call life.

I write…because…

When cancer with a little ‘c’ strikes, the world doesn’t stop.

It may feel like it, momentarily. You might want it to . But it doesn’t.

When cancer with  a little ‘c’ strikes, other things don’t stop happening.

Other things don’t become less important. Other things don’t get better.

At times you may think they will, but they won’t.

No. Life goes on. Problems still come, family still get sick. People can still be nasty. Those you love can still become terminally ill. Nothing stops just because you now have first hand knowledge of the ‘c’ word.

How I wish they did! How I wish things came one at a time, enough to worry me and enough for me to cope well with. Two things I can deal with, even three serious issues but when they keep coming I become over-whelmed.

In the beginning of this journey I never asked to take, I wished I could un-know what I know. I wished I could un-hear the words the consultant uttered in his brief 3 minute slot. I wanted the before cancer time back, the calm, the love, the good and the beautiful.

The words of a song I knew years ago. ‘How can the world go on turning, how can the sun still shine. Don’t they know its the end of my world…..’. That’s how I felt.

When cancer strikes, life goes on. It still deals it’s blows. Still sends its tests. Some-days you wonder if and how you will survive.

But you do.

I have been very grateful this week to my FB friends on the 2 groups I belong and my other friends for support, love and advice.I was told to ‘keep writing’. So here I am. I was reminded by a young woman I met through my work, that I am a strong lady and have survived some horrendous times. Thankyou Andrea Jayne Howells,for those words.  Dany  Sherlock Park,suggested I take myself back to the worst time in my life, and tell myself it will never be that bad again. Remind myself that I survived that.I often use this in my work.

Back a few years, during my Masters course, I had to explore my life as part of my counsellor training. That was hard. But the thing that got me through, that helped me more than anything, was writing everything that happened to me, warts n all, down. So I wrote my autobiography. Laying ghosts. Revisiting the horrors that were my childhood was horrendous.At that time, I thought childhood was the worst time of my life and I survived to tell the tale so to speak.

A few years after the book, I became entrenched in nasty wicked hoax, over the Internet, answering a plea for help from a young woman who had read my book. This continued for 6 months, 24/7 honing in on my emotions, and entrenching me in the most horrendous nightmares that brough my own childhood back into my life. Flashbacks, night mares and every fear I had as a child. It resulted in her being taken to court.

That I thought was the worst time of my life .

The past three plus years, with ‘family’ doing their best to break me, to hurt me, to ruin my reputation and my life, was heartbreakingly difficult especially as it all began with lies from my own daughter. That was the worst time of that part of my life.

Added to all of this, the last grandchild I was ever to have was lost and my heart broke.

Throughout the past 31 years, obviously not childhood and young adult hood, the only real constant was David, my husband. Hearing he had cancer WAS the worst time of my life. But the worst had only just begun, I see that now.

As you know, I recently had a heart scare and am waiting to see if I need a stent. So I am not as well as I would like to be or need to be to look after David. This past week, week one after Robotic surgery has tested us both. To see him in pain, was just too awful. To watch him watching me, when I did the things he can’t do, was again hard. Helping him with personal tasks, was so difficult for him. Making sure he drank enough, is drinking enough, seeing to the things he usually sees to, is hard and I admit to having to struggle through. David is a wonderful man, looking after me he says his favourite thing in life and he does it so very well. Now I am trying to do the same for him but falling short somewhat. One of the things I find hard, is walking the dogs, they still need to go out and I often went with my husband but after my scare, not being well, I didn’t always go. Now I have to. It isn’t their fault we are both unwell, it isn’t anybodys fault.  Theres the rub. If it was I could blame! But I have no one to blame so I moan, on social media.

Wednesday brought me online grocery shopping. What a fiasco that was and I won’t bore you with the details but a well-known store had never heard of me although I have shopped there for at least 10 years so I couldn’t log on! Small issue really in the scheme of things.

Thursday brought the devastating news that my son may have a potentially fatal or crippling illness and I can’t get to him.

So David has had major cancer surgery. My brother Tony, whom I love dearly and can’t get down to see, has a few months left if he is ‘lucky;’ and now my son, who again I can’t visit. Yesterdays posts were a culmination of everything.

So life does go on. It still deals its blows.

Still send sends tests and once again, risking a telling off, IT’S NOT FAIR!

It’s not looking after my husband I don’t like: I do that willingly.

Its not the personal ‘bits’ I do those willingly.

It’s the responsibility of staying strong and well enough to care for him properly. It’s watching him in pain and discomfort.

It’s not being able to see family I love at a time they need to see me.

So looking back, yes I have survived a lot but really don’t want anything else to have to survive Thankyou!

Writing this I realise my biggest emotions today.

Firstly its the loneliness.

I can’t let David know how I feel.

I can’t let David know of my worry.

I can’t let him know of my pain and hurt.

Secondly the sad.

 I can’t let him see my sad. So again in the words of a song, ‘I whistle a happy tune’ and pretend. Something I became expert at from a very young age.

Oh how I want ‘before cancer ‘time back. When ,life was good. When David was well, fit and healthy. When Tony was the same and my son was okay. When I looked out of my window and saw the beauty of the countryside that surrounds us ‘here on the farm’.

I don’t see that beauty now.

So here I am, saying sorry. Not for writing but for moaning.

Not for saying it’s not fair, because it isn’t.

But for showing that even ‘a strong lady’, your words Andrea, can sometimes become a quivering wreck and feel anything but strong. Physician heal thyself has once again failed me.

All I ask is that nothing else is thrown at us for at least alittle while. Not a lot to ask is it?Let me just stand still, in peace, for a moment.

Thankyou for reading x

 

 

 

 

 

 

 

 

These past weeks I have read a great deal about forgiveness. Something I have done, mostly for family, over and over again. But some things are just too big to forgive. The hurt that is inflicted, the damage that is done and the pain endured at the hands of another, are sometimes just too huge to deserve forgiveness. I have realized  this only too often over the past 3 years. As a child I attended church and Sunday School and was taught that to forgive was paramount. At that time in my life, things were happening to me that should not happen to any child. I knew I had to try to forgive but struggled and asked God over and over to help me. He didn’t. Now as a woman, I will never find it in me to forgive those who hurt me, hurt little Carol Ann.

Likewise, the past events, courtesy of my daughter and sister, that have taken their toll and left me reeling and unwell, can never be forgiven. The time stolen from me over the past years, time that should have been given to David and my family here; but were wasted trying to make things right, trying to salvage my name, my reputation and my living, were all so wicked and undeserved that forgiveness does not come into it.

We, David and I, have wasted so much time on others, people and things, that I think now were not worthy of our time or our worry, but were thrust upon us in the cruelest manner. So, no, forgiveness is not in the plan except forgiveness for myself for wasting precious time and energy and allowing things to make me ill.

Life should be so different, this is possibly the scariest time of my adult life and I should be able to pick up the phone and gain comfort from family and friends whom I spent a lifetime loving unconditionally. But because of the lies and made up stories ‘family’ are not there for me or us. Now at least, some of these family will realise who is telling the lies and who is telling the truth, some comfort I suppose. My daughter is still lieing and protesting her innocence in her latest nasty against those she has deceived but, I hope, longer being believed.I have a few close friends, family who now know the truth but as a parent, as we get older, as we go through the trials of illness, we should be able to gain comfort from our children, as they always have from us when ever necessary.

David and I met after our children were part grown and he has been a wonderful dad to Marie and tried with Lisa but was not really given a chance, despite his every effort. These past weeks we have both stared mortality in the face and made  some would say, selfish decisions.

We are a few days from David’s operation for Prostate cancer and have talked a great deal about our children, all of them. Me having this latest heart scare has brought back happy memories of my daughter’s childhoods but also all the nasties of the past 3 years.

Now it is all about us. I need to get myself well, have the Stent inserted asap, after David has recovered. We need to put ourselves first, concentrate on each other, something we have never done because of putting family first. We have also taken care to plan ahead so that our beloved ponies, who can live for 40 or more years, are cared for, together as a herd, when we can no longer look after them. We are working our way through our ‘tick’ list and putting our house in order so to speak. and then will begin our bucket lists. We will love each other through everything life continues to throw at us. Yes we will get frustrated, worn out, scared and angry but through it all we will share our pain with the thing that has helped us through every other trial sent to us, humour.

Don’t get me wrong. We don’t intend on going anywhere, well not just yet. But it makes sense,this one time, to make sure everything is in place . A ‘just in case’ that puts our minds at rest.

Currently I am only reading positive posts on my group pages, self-protection if you like. I have learned so much from other sufferes of PC and they have comforted me, given me insight and strength and also made me laugh. So important.Thank you all.

So. Wednesday will see us off to Cardiff, having left the house, stables and barn covered in post it notes as reminders to our young friend who is house sitting. We, David and I will stay in a hotel close to the hospital for a night of cuddles and comfort I hope.

Thursday will see us at the hospital bright and early, well early at least, and I will stay in the building until David is back out of recovery, that will be the first time I will be allowed to see him post op.

We hope and pray that the operation goes well and straightforward, no hiccups but I will be close, if needed.

Then Marie who will have joined me in the day, will take me back to the hotel and stay with me for the night.

Friday, if all goes well, Marie and I will collect David from the hospital and we will return home and recovery will begin.

I only have a phone that makes calls and receives calls so I won’t be able to update as some on here do. But I will get back to everyone asap after we are home, maybe the weekend.

We know there will be down times, trials and difficult times. Things we have never faced before but we will be facing them together. We still have a long way to go on this journey we never asked to take but will take each day at a time. We won’t be thinking of the ‘what ifs’, only concentrating on recovery and love. One day soon, we won’t be saying David has cancer but David had cancer.

Please think of us and send your good thoughts. But understand one thing cancer with a little ‘c’, we are gonna kick your butt!!

Thanks for reading and watch this space. xx

 

My blog is late this week as I have been unwell but as it is a special day, I felt I wanted to write aso here I am.Please escuse any mistakes.

32 years ago, after walking away from a failed marriage  and a few relationships short-lived, the last thing I wanted was a man in my life. I had two daughters, my cats and my little dog, 2 jobs and was struggling to keep all the plates in the air. Money was tight but I tried to provide all that was necessary for my little family. I had some very close friends and some health issues but all in all life was okay.

A friend of mine who was recently divorced, persuaded me to go ‘clubbing’. I had missed all of this in my early life and it was glamorous, exciting and fun. Dancing was something I loved and stayed on the dance floor for as long as possible. Then one night, July 19th 1985, I met a tall dark handsome stranger, just like in the movies. His name was David. He asked me to dance, to my surprise and amazement, as I thought he had been watching my friend Julie, a very beautiful girl, but no, he had been watching me. He then asked to take me out the following week. We dated for a while but split up twice, because neither of us wanted a relationship but always got back together and married 30 years ago this September.

We had some wonderful times and some not so good, these, mostly courtesy of family. We moved from Hampshire to Wales in 1996 when David was moved to Bristol with the MOD. I became very ill and was told I would never work again and could possibly become disabled. I wasn’t going to let that happen and investigated any way possible to get back into the work place. I have always loved people and always been able to talk to anyone and have them open up to me if they wished to. So I took myself off to college, then University and embarked on my current career. I gained a Masters in Cognitive Behavioural Psychotherapy and opened my own practice. Wonderful years, especially working within the Valley communities of South Wales.

I wrote my autobiography that instantly became a Number One bestseller and life was good.Through all of this David was my support and encouragement. During the writing of my life story, mostly done at night when every one was asleep, I revisited the horrors of my childhood. This often brought nightmares and flashbacks. Again my husband was always there, holding me and keeping me safe.

In 2012, I was subjected to a nasty cruel hoax that continued for 6 horrific months and changed my life and my self-confidence and spoiled my peace. Then the  following 3 years were the worst in my adult life with cruelty and bullying from ‘family’ as I have mentioned before. These were horrid times but my ‘rock’ would hold me while my heart broke, gently smoothing my tears.

The reason for today’s blog, is that through everything, good and bad, David has been there at my side. Hospital visits, of which there have been many. Animal losses, family and friend losses, always able to make me feel better.He has laughed with me, cried for me, held me and comforted me and has always given me back my ‘safe’. He has witnessed me at my worst and when my heart was broken by the very people who should have loved me.

Now on this Valentine’s day we are approaching the time for him to undergo Robotic surgery for Prostate cancer. That in itself is a scary prospect and he is being so strong. As I have said before, David doesn’t get stressed, he doesn’t worry and is always pragmatic. He sees the cancer as the bad apple in the fruit bowl and it needs removing. Then we will see if any of the ‘decay’ has affected any thing else.

The past few weeks , when I should have been there for him, I have been quite ill. We have spent 2 complete days in hospital, having scans, etc and my blood pressure dropped dangerously low. They have found the cause now, a blocked artery in my lower neck and last Tuesday they were going to send me by ambulance from Aberystwyth hospital to Morristons in Swansea, as an urgent case. I was terrified as you can imagine but all the time thinking of David’s op. How can I look after him when I can’t look after myself. Eventually it was decided that I could go home and wait. I am waiting. I have an appointment for a Vascular consultation to assess whether I need a stent inserted into the blocked artery. Bit frightening but nothing I can currently do.

So this week I have been scared for me, scared for David but realised that I was never scared for us. We have been through some horrible emotional times these past years and survived and we will survive this. Not sure how but we will. As long as our bodies heal, our love for each other and beyond that, our friendship, will see us through.

I also realize that I have been so worried about how we will manage this, how we will get through it, how I will be able to care for him, that it has helped make me so poorly. I am very hard on me and that has to stop. I am not superwoman and if I am ill, I am ill! I know that doesn’t help the situation but making myself worse by worrying won’t either. I have been so scared and felt ashamed. I have been left wanting and felt ashamed again. Felt helpless and inadequate and that has rendered me more scared and guilty. I need to put this right.

One of the most important things I try to do for clients, especially when they present with similar feelings, is to give them permission to feel the way they feel. To say its okay to be scared. It’s okay to be angry, frustrated, resentful etc. It’s okay to be human with all it’s frailties. To give permission removes guilt and helps the healing process,in clients with grief, sickness, trouble or pain. Today I give myself that permission.

Valentines Day is about love. It’s about showing that love and appreciating the little things. I have a wonderful husband who is always there for me no matter what. My being ill hasn’t changed that, never has and his having cancer has certainly not changed my love for him. If anything I love him more for his strength, his calm and his still managing to make me smile.

So to every care giver, I give you permission to have these feelings,but more importantly, give yourself that permission and life will seem a little easier.

Now, I am very tired but wish you all a good week and please spare a thought for us next Thursday when David has surgery with me at his side as long as I can be.

Thanks for reading. x

 

 

 

Today is a bad day. I only usually blog on Sundays but today I feel the need to write. A few weeks ago I had a strange ‘episode’ in the night. I went to get out of bed and the room began spinning around me. The mirror on the wall behaved as though it were being chased and trying to catch up with the painting on the other side of the room. I tried to focus on one thing, as learned when dancing and having to spin. Focus on one spot and the spinning is bearable. Couldn’t do that and it certainly was not bearable. The spinning seemed to get faster and faster and was so scary. I had to wake my husband to take me to the bathroom. I couldn’t stand properly and couldn’t balance. He helped me and then helped me back to bed. HE HELPED ME! He has cancer and he helped me!! That just isn’t right! Even when I closed my eyes the room continued to spin. It reminded me of years ago, when I had possibly had too much wine, but now being tea total, that wasn’t the cause. It disoriented me and stole all of my confidence , this lasted most of the following morning.

A few weeks later, after a similar episode and because I need to be well for David, I mentioned it at my weekly blood test and my GP has ordered a head CT. He thinks it is stress related but needs to make sure it is nothing else. It could be inner ear issues, or stress Vertigo but whatever it is I don’t want or need it. Not now. Not when I need to be my strongest.

David has often nursed me through illnesses that I have had, after operations and comforted me through all the nasties by family, over the years. He is, as I have said before, my rock. And here am I, physically falling apart just when he needs me. This can’t happen! I won’t let it. But I can’t stop it. I know illness has no time agenda, I know these things happen but once again I am saying, it’s not fair! I want to be there for him, be at his side as he goes down to surgery and there when he returns. I want to be with him through everything and anything he may go through and I need to be fit and strong. But what if, I am ill at the wrong time? What if I can’t be there when he has surgery? What if…….

When my daughters were growing up and if they were unwell, I was there, no matter how I felt. Mothers do that , we just get on with it. I have always ‘got on with it’. So why can’t I now?!?

Here is the physical why. When these ‘attacks’ occur, I can’t stand unaided. I can’t see properly, I can’t balance. I feel sick and over hot. So am unable to actually look after me let alone anyone else. I am scared to go to sleep in case it happens so my tiredness is growing every day.

Emotionally and psychologically, I am so scared, that all the worry and stress, caused my ‘family’, my eldest daughter and youngest sister particularly, have rendered me so poorly I won’t cope.This vendetta against me,hasn’t gone away as I thought it would and hoped it had.

I write on here , as you all know, to help process things that happen in my Journey with cancer with a little ‘c.’ Last week, I had many likes and many comments and lovely words of encouragement and thanks for sharing my thoughts and feelings. One of the reasons for the blog is to hopefully help others who feel this way, or the way I feel. I want to say it’s okay to be scared, to be angry, to be sad. Being given permission is something I do in my work with clients. I see no wrong in what I write as long as it doesn’t hurt anyone and is the truth.

I was ‘told’ by my daughter Lisa, to remove the blog and stop writing about her. Not personally, not in an email but as a comment on my blog!. I won’t do that. For the past 3 years she has shut me out of her life, because of my honesty. The only contact has been through nasty lies on social media. She has caused me so much pain and hurt that I don’t recognize the girl  who grew up with me and with whom I shared a great love.No emails, no phone calls, nothing. She wishes I were dead and has ‘replaced me’ with her evil aunt. I have accepted that now but am confused as to why, if she has ‘kept clear ‘ of me, her words, she is reading my posts and my blog? Our families give us most of our memories. Some good, some bad but they are there no matter what. Our past influences and impacts on our present. The things done to me over the past 3 years are the very reason I am so low and so poorly. If none of that had happened, I wouldn’t be so run down now and would not be afraid of not being here for my wonderful husband and wouldn’t be writing this blog. So I won’t remove anything and will continue to write as I need to, to help me cope with how things are.

I am scared today, for the reasons given above. The what ifs! I am angry that I am here, in this cancer place. I am angry that the man I love is having to go through what he is going to go through. I am angry that ‘family’ have rendered me this low.

I will close now with thankyou’s to everyone who wrote to me last week. On my posts or in pm’s. It means a lot. I want to send you all, ‘sufferers and care givers’, my love and respect on this journey none of us chose to take. Hugs to you all x

This has been a horrible week. Didn’t think life could get any worse but here it is, wallop, more bad news. As I said last week, I am alienated from ‘family’ because of the lies spoken by my eldest daughter Lisa and my youngest sister Trisha. The treatment dished out to me over the past 3 years have left me angry, hurt and broken. Just at a time in my life when I need all the strength to face the future here ‘on the farm’ with my husband. And now the prognosis of my beloved brother.Lisa and Trisha have caused me more damage, both as an author and as a woman, that I would have thought possible. The author part I have managed to repair, but me, well it still hurts beyond belief on a daily basis. After wicked lies and slurs on my page on Mothers Day by my eldest daughter, I felt ashamed to be her Mum.

Why I am surprised that she has now hurt someone dear to me, someone I love and have loved all of my life, someone who is now very poorly;why I am surprised? I don’t know. If she could steal and lie and cause so much trouble to me, her Mum, she could do it to anyone. I tried to tell him and ‘family’,how easy she found lying. How she couldn’t be trusted and how her evil aunt was feeding lies about me to her, that she knows are such, but is, for some reason believing and then telling family. But he trusted my daughter. He has always known that I am honest. Something he teased me about all my life. I suppose he thought ‘like mother like daughter’. As I have never hurt him, never let him down, he thought she wouldn’t either. But sadly, she is nothing like me. That isn’t being conceited, I am not perfect but I am honest and don’t tell anything but the truth.

There’s a saying about ‘the sins of the fathers…..’. I am experiencing the sins of my daughter. I am so ashamed and angry that she could betray someone so fragile and trusting and not turn a hair, so angry that it physically hurts. Any betrayal is bad but this one is huge. Now she has gone too far. We take our children hurting us, because they are our children. But now she has hurt and caused pain to those I love. Those who believed in her. I just hope his children can get back what is his. They cannot undo the harm done, the trust broken, but they can make her give him back, what she has taken.

But there is a positive here, I hope. Those who saw me as the bad guy. Those who believed all the made up stories about my trying to ruin Lisa’s adoption of a little girl etc. The lies told by Trisha about Lisa’s dad. The lies told by both, about me. Maybe, just maybe, these ‘family’ will now see these two relatives for what they are. Trouble makers, liars and thieves. Not easy for me to say about my own daughter but as she disowned me 3 years ago and said I was ‘dead to her’ it doesn’t matter. It is the truth.None of’family’ have given a thought to things they have said about me,lies, on social media over the years. So I am not going to dress up the truth. 

The hurt I have been feeling for 3 years has now become so much sharper, so much deeper.I am hoping now that ‘family’, my nieces especially, will once more come back into my ‘family’ at a time we need to stick together and be as we always were.

As you can tell, I am angry, ashamed and embarrassed but I need to use the anger as strength, something that has been missing this week but previously has helped me deal with the other important things in my life, my main priority. My husband. The family and animal charges I have here.

Now back to the reason for the blog. My cancer journey.

It has been a hard week,  with our little dog having surgery, to remove cancer. She is doing well and coping with the restrictions she has post op. I will know next week if there is any need to worry further, when the biopsy results come back.

We now have a date for David’s pre assessment and his surgery. Now it is real, the nightmares have returned. The fears of losing him have come back big time. I don’t show him,but in the small of the night, I lie next to him, listening to him breathing and loving him more every second. I want to pray but can’t. I used to pray a lot. As a child I asked God to help me, to stop the pain, the abuse, but he wasn’t listening. Often through my life I prayed, asking for guidance, reassurance but nothing. I prayed for my best friend during her cancer illness, for my eldest sister Georgina in hers. Again, he never heard me. During all the pain and hurt of the past years, I have prayed for it to stop or the strength to survive it. Nothing. So, no, I don’t pray now. I show David my love in every and any way I can. I talk about his condition, when he wants to. We read about it, when he wants to . He comforts me and I comfort him. But the huge hurt prevents me from showing how I really feel. The hurt of the past few days has taken over and that makes me angry.

My brother can’t help how he is, his illness, of course he can’t. But if David didn’t have his illness we could have visited Hampshire. So I am again angry at cancer! It Isn’t my brother’s fault I feel so ashamed of my daughter, of course it isn’t and as my niece says, it isn’t my fault, not my responsibility, Lisa is grown woman. But responsible is how I feel along with the shame and hurt.You ask any Mum if they would feel the shame because of the actions of their child. Of course they would!

When pain hits me, emotional pain, I used to go out to my horse, Star and sit or stand with her, feeling her strong warm body against me, breathing in her wonderful smell. It always helped me. She was my friend, my confidante, I gained so much being with her. Sadly she is no longer here. So times of huge sadness I will often go to her resting place in her paddock, our top field and talk to her. But the hurt this week, has brought back the hurts and betrayals of the past 3 years, the fear of the cancer in my wonderful man, the fear for the future etc. and I am too scared to do this. Afraid that if I do, I will fall apart and won’t be able to get back together.

I thought I was all hurt out. I was wrong. I am trying so hard to stay positive but it is getting so hard. I tell David I am okay. I have been told, on here by lovely concerned ‘FB Friends’, that David will be fine. I am almost sure Ellie will be fine. As for my brother, well that’s something I am still struggling to come to terms with. He is so far away. I so want to give him a hug.Distance sucks!

We have been putting together the things he will need in hospital, I have to stop myself from shaking. I don’t want to do this. I don’t want to face the reality but somewhere, back in the depths of mind, I know it has to happen. But I can’t reach that far back. I feel quite inadequate today, not able to stop what is happening, not being able to take the cancer from David. Not being able to visit my brother, not able to make him better. I know in reality I can’t do any of this but for some reason think I should be stronger. Be the strong survivor my readers write to. The strong capable Carol Ann I used to be. But somewhere, once again, she has gone missing. I need her back. Not tomorrow or next week. Now! I need her now!.

Well there it is in all it’s glory. Angry, sad scared and hurt. Not bad for a Sunny Sunday  is it. I should say sorry for such a post but I promised at the beginning of this journey I would ‘say it as it is’ This is how it is. A bad day.

Thank you for reading . x

 

Postscript.

I have had many viewings on this post and many private messages and emails so thought I would write an update.

Now the inevitable has happened and I have lost my beloved brother, those who believed the lies told by my daughter and her aunt, have realised who the liars are. Seen them for who and what they are. My nieces etc. have welcomed me back into the fold. Have accepted me back into the family and for that I am eternally grateful. I may have lost Tony but regained his and my family. Back to where I am glad to be and will make new memories.

Further postscript. . xx

My brother took his sister Trisha and niece to court and even though he died before the verdict was made, and although they were all found guilty, I am glad his family continued his fight.My daughter had to pay the money back and will now have a criminal record, something I tried to prevent. I had suggested that she settle before the final court case and sentencing but she ignored me. She is still my daughter and I was still hoping to help her see sense. We all know that my sister should have been punished and so should her boyfriend Ben who colluded, on the last court case, in placing all the blame on my daughter. They retracted their earlier statements that said the money had been a gift and said that ‘at no time had they thought it had been a gift’. Acknowledging that it had only been a loan. Leaving Lisa to face everything on her own. I had told my daughter my sister would ‘drop her in it’. I had warned her as soon as I knew Trisha was back in her life, after more than 35 years with no contact, not to trust her. But she did. I hope now she has learned a valuable lesson. Maybe now she will understand that I only had her welfare at heart, as always .I will always love my daughter, Lisa and her children, my grandchildren, Harrison, Jordan and Hannah and hope she knows that. I don’ t have to like her or what she has done over the past years. But love her, yes.

 

Postscript to my postscript.

This post has been visited so many times I am thinking of publishing it again but in more detail. I have tried hard to make peace with my daughter but again, failed. After everything she has done, to me  I know Tony would have liked us to make things right. But after getting so close to doing so, she once again pushed me aside.I will never give up on her. Unconditional love means just that. My love will continue, forgiveness I don’t know. Until I can understand why she did the things in the past 6 years that she has done, especially what she has done to me,I just don’t know but was willing to move on, whatever that means. I think because she has told the lies told to her by my sister to anyone who will listen, it may be impossible for her to backtrack , so having me back in her life can’t happen. Only she can put that right. But I do need to know the whys and hows to prevent anything damaging ‘us’ again. One-day I hope she will see this and contact me. With Christmas upon us again, I hope memories of Christmas’s with me and our family, may make her rethink and get in touch. I can always hope.