
Some people ask why I blog. Since I joined the PC groups I have had support, advice, humour and love. I began my story from my perspective, to show how the wife or partner, of a man with Prostate cancer is affected by this horrid disease. It isn’t my husbands journey, it is mine and because PC does not come in isolation as I have said before, I write about my life, as it happens, including aspects of it, that have either added difficulties or pleasures during this painful scary time. On the PC groups I joined, I have read stories of great strength and courage and some of great heartache. My blog went down well, right from the start and I am grateful to everyone who either liked, commented, shared or pm’d me about any of the blogs posted. I read other members stories in their own blogs, sometimes they are difficult to read, painful and very personal as are my own. I write honestly and openly for those who are interested in how this disease can affect the care giver as well as the sufferer. Because I believe in the merits of writing down and sharing your inner, most feelings, it does not mean others have to read it. In my case,you will know it is a blog and those familiar with my kind of writing will understand that I write with no holds barred. Writing can help make sense of things, clarify how I really feel; I tell in my writing, things I know will be read by those I am no longer able to see. Because I only ever tell the truth, I have nothing to hide, it might one day, reach those meant to hear what I say, they may not always like it but I have no choice, this is the only way I can do that. It is their choice whether to read it or scroll by.
As I have said many times, PC does not come in isolation. It barges into your life regardless of problems or pain that are already there. It doesn’t differentiate if a person’s life is easy, hard or just plain difficult already. We all have ‘other stuff’ going on. All have family issues, work issues, in our lives that cause stress, pain or sadness. PC still comes and hits us in a huge overpowering manner. When I began this blog a few years ago, when David, my husband was being checked for PC as his PSA was high, life had already dealt me and my family blow after blow as I have said in earlier blogs. So nothing new. I promised from the start, to tell it as it was. Honestly, openly missing nothing out. Others have written and told me of their own personal struggles with their husband’s diagnosis and other things they are trying to cope with at the same time as this illness. It is always encouraging to find you are not alone that others also can be overwhelmed by their lives. That it isn’t just you. Some of these lovely people have become friends. I promised to tell it as it is, wart’s ‘n all and have and will continue to do so. Taking this in mind, please remember this is from the wife of a PC sufferer, my perspective: also from a mother, a health professional and sometimes, from the me, who is today, feeling a confused, overwhelmed little girl.
It’s been a very strange week. I think I have experienced every single emotion known to man. Sometimes all at the same time it feels. One year since David had surgery to remove his diseased Prostate. What a year it has been, documented in every detail, emotion and thought in my weekly blog on here. The range of emotions that visited me is huge. Fear and anger being the strongest in equal measure. This time last year we were in the after math of the surgery, catheter in place and a very weak but resolute husband having to allow me to help him. It is usually the other way round where health issues are concerned. We have had more hospital and GP appointments for David than he had in the previous 40 years. His last PSA result was undetectable and the Consultant says he does not expect any recurrence as the cancer with a little ‘c’ was non aggressive. So one year on we have reason to celebrate. That brings the happy. The emotion we have seen little of but knowing this elated both of us and we began to look ahead to a future we had not been sure we had.
But the happy is tinged with sad, angry, frustration and the ‘F’ word, this time not for me.
Today saw me opening a box of my brother Tony’s mementos, that his daughter had kindly sent me. This was so sad, so hard and painful, that although I have had it a few days, I only opened it properly today. The things he had kept warmed my heart. Photos of us together as children, cuttings from newspapers of my first book being published, little gifts I had sent him over the years, not everything but those that had obviously meant something to him and a little silver pill-box engraved from me to him ‘with love’ given to him in 1966 when he gave me away at my first wedding. He had kept these things for years, that felt good. Showed me that our love was strong and shared. I can’t begin the grieving process, not ready to let go. Never seems to be the right time to sit and allow my feelings, my tears to come and so they are on hold. I am hurting beyond hurt but can’t seem to allow it to come. Too much else happening maybe, I don’t know.
As a family we are still affected by the loss of our lovely little pony, last week. But like the grief for my brother this has been put aside for another time. Because of losing her, Tammy, Oberon’s companion, we had to find a new stable mate straight away or he would have gone downhill and as he is in his 40’s we couldn’t risk that. A ‘happy’ is that he now shares his field etc. with Seva Gigi, his new companion.
You would think that was enough but that is not how it seems to happen of late, never one thing at a time. When we arrived home after our visit to Portsmouth, we found our youngest daughter Marie to be very unwell and as the illness may be ongoing,we have had to organize our home, to allow Marie’s family to return here. Her health has not been good on and off for years but this time she was in so much pain, she has not been able to take care of her horses, the project she had begun and do the travelling involved. So when they asked if they could come back here to live for a while, we of course agreed. So we have been working hard for that to happen. Buying a touring van and making the static home, work still in progress, fit to accommodate her, her husband and 5 cats. Build stables to allow her to move her 3 horses to us and everything this needs to make it happen. It has been full on and hard work but her health is important and we willingly will help her as any parent would. The emotions around this, sadness for her, fear for her health, worry at how we were going to cope and stress around the whole thing, has diverted my thinking for a while, giving me a diversion for the real big issues that have happened in this past week.
During the last year as those who are familiar with my blog know, we have been facing the death of my beloved brother. Sadly this ended on January 4th this year. Leaving us devastated and heartbroken. Throughout the past year, he has been trying to come to terms with the betrayal of our youngest sister Trisha and my eldest daughter Lisa, who both took advantage of him in his frailty. This resulted in a court case that happened last Thursday. After my blog last week I received an email from my daughter Lisa, telling me not to mention her name ever. I refused. In the past I have covered for her, let her get away with things she did to me and I am afraid that maybe this has lulled her into a false sense of right and wrong. Maybe she feels she can do these things and suffer no consequence, I don’t know. But hate to think I contributed in any way, in her ability to hurt those who trusted her. Hurting Tony and making his last year so hard and unhappy was cruel. She and my sister could have stopped all of this months ago.
During Lisa emailing me, I tried hard to encourage her to go to the court and if she really believed she was innocent, to tell the judge and if not believed, to offer to pay back what she owed. She refused. It was breaking my heart, writing email after email and getting back refusal to do the right thing or to go to court. I owe her nothing, unconditional love has been tried out of existence by my own daughter. I do love her, I will always love her but can’t condone what has happened. She has hurt me beyond pain over the years, lied to me, lied about me and caused me so much hurt but I still wanted to try to save her from the courts. Her last email was ‘softer’ than the way they began , she admitted to hurting me but no sign of a sorry. I so wanted her to say that and or, to go and plead her innocence if that is what she truly believed she was. She refused. Now she is a position I am sure that is scaring her and she will need support to survive it, I only hope she has that support. Not by her son bullying Tony’s family or making threats but by doing what is right, in any way that she can, to avoid even more punishment coming down on her head. I am scared for her and her future but can do nothing. The woman she ‘replaced’ me with has caused all of this as I said she would. There is no joy in knowing that.
I had warned my daughter a few years ago not to trust Trisha, my sister and said that when the going got tough or if things didn’t go Trisha’s way, she would walk away from Lisa without a thought. That she would come into her life as she had done, just to hurt me, trample all over it by pretending to care and then walk out when it suited her. All of that has happened but the worst thing is that although it was my sister and her boyfriend Ben, who instigated the whole thing against my brother, because they changed their first statements, even though they had said one thing in the first statement, changed it to say it happened as my brother had said, on Thursday, exonerating Tony; they dropped my daughter in it,right it up to her neck. I read the statements, and although I was not party to the events leading up to this, my brother had told me what happened last year and as he had never ever lied to me, I believe him. The statements from Ben and Trisha were full of lies, in parts as I did know they did not happen. The judge must have seen them for what they were but could only act on what was presented on Thursday. Lisa now has to bear the brunt of everything. Don’t get me wrong, she obviously needs to be punished for her wrong doing but she does not deserve to be the only one and the others walk away laughing as I know they will. All 3 of them should have had to pay and only my daughter will. But I believe in Karma and if that doesn’t happen, I will take the steps I wanted to take back a couple of years, when Trisha lied to Harper Collins my publisher and lost me my contract. Although the publisher knew they were lying, her and Lisa, they were afraid of litigation and so I lost out. I put this right but my daughter knew how important my book was to me, the years of pain writing it and telling of my childhood abuse was one of the most difficult things I had ever done. My book helped so many. It broke my heart to lose it until I was able to have it republished. I will in time, take steps to make sure my sister pays in some way. Angry doesn’t get close.
So many emotions, so much feeling and confusion within my thoughts.
Ecstatic that a year ago surgery saved my wonderful husband’s life.
Sad at the loss of a pony.
Devastation still, on the loss of my brother and friend.
Happy and sad that Marie is coming back to live ‘here on the farm’.
Scared for Lisa and my grandchildren and more angry than I would have thought possible that Ben Spillet and Trisha-Anne Hopkins have walked away without being punished for the crime they committed, the worry and hurt they caused Tony and his family and for the pain they have caused me.
As the picture above says, happy and sad and confused as to how that can be.
Thankyou for reading. x














